It is really interesting, I kind of thought with my budget being so tight and me being more content at home not finding it easy to be around people even to just pop in on people who tell me too.
I have not been anywhere out of my home area, well the dogs walks and I have chatted briefly with neighbours, for a week. I imagine to many this must be such a strange thing and way to live. I do not believe I am depressed, as I am achieving some small things inside my home. On top of having been getting my veggie garden up and functional again this summer. My dogs make me laugh and I laugh at things I watch appropriately
I have achieved finding a new psychiatrist, but I had to do all the work and that really annoyed me and exhausted me. We have a company/organisation called Phscy 2 U. Which is supposed to provide people who live in rural and isolated areas the access to psychologists and psychiatrists. I have been seeing a psychiatrist for 7 months (need to have an assessment conducted to get a letter from he/she to apply for disability pension). I use the term 7months very loosely here. I saw this particular psychiatrist for five months and then I have been trying to find out why he told my GP I no longer wished to see him. (I never said that). So to catch to the chase. I had rung the organisation to find out what was going on and if he would see me but I needed a new referral from my GP which was sent on the 12 December 2019. They never got back to me. I rang again, to be told that they would look for another psychiatrist.
Never heard anything, and as it was Christmas time now there was no point trying again until the new year. So ring again I did. No he was not seeing me anymore, no reason. They would look for a new psychiatrist.
One week later I ring again having heard nothing, oh the Psychiatrist had been away on leave and they would imagine I would hear from him soon. Another week passes, I hear nothing.
I ring again to be told I have to wait for this person to contact me as I am on ADHD medication and he is the only psychiatrist who can prescribe in Tasmania. I say I am not on ADHD medication where did you get that information from it is incorrect. Oh. I say since I am not on that medication you could find me a psychiatrist who could see me. She says she will send some emails.
I ring back again 10 days later. No record of me not being on ADHD medication no record of the conversation I had 10 days ago and no emails sent to any other Psychiatrists. Me not so happy. Person I spoke to lovely and says she will send something of right now. Me great I have been waiting since the 12th December it is now 26 January, and I have rung several times to follow up and no one has ever contacted me. This is making me unwell having to chase all this up my anxiety CPTSD is not great.
I ask if I can speak to a supervisor, she says no one is available at the moment but someone will ring back. I ask today? Yes today. OK
I wait and wait, the office closes at 4pm I have heard nothing and it is 3.30pm so I ring. The woman I spoke with was no help I said I had been waiting for a call from the supervisor, she says did you want the office manager or the Head person, me I just want someone who can help resolve this. She then went on to tell me emails had been sent before, I said are you meaning the emails that were sent this morning? No before that. Really how come you are the first person to tell me this, as the woman I spoke to this morning said nothing had been sent and she would email them. So would you give me the dates these emails were sent please. She was reluctant to do this. I again asked for the dates, and said to her I felt that I was getting a bumsteer from this company.
I also found out that the actual second referral from my GP which was faxed on the 12.12.19 (I rang my GP to confirm) was not put into this companies system until the 06/01/2020. No explanation available as they did not close the office until 24/12/19
In the course of this conversation I discovered there was no record of one of my phone calls and the conversation from that date. I as an RN/RPN (no longer working) stated that legally that was a huge error. I had called and there was no record of it! I said in a legal situation the courts would say if its not documented it did not happen, and that is wrong in so many ways in a medical setting to not have a record of a clients call documented. I said I would be contacting the Ombudsman in regard to that. I also said I had a right to know when the emails were sent I did not want to know who too. Just the date they were sent. She then admitted they were sent that morning! UGGh! I was feeling so angry.
I was so fed up and I could feel I was being triggered and my anger was beginning. I hung up not expecting to hear from anyone today.
A few minutes later I got a call from the person in charge. I had managed to calm myself a bit in the interim time, but I just waited for her to begin the conversation as she had rung me. She begins with there is no issue about the phone call not being recorded. I disputed this. I also requested that I wished to make a formal complaint about the process and what had occurred with the documentation she refused saying that me speaking to her was dealing with it. I said NO I wanted it to be documented as a formal complaint so it would go to the governing body. or whomever. As medical notes had to be kept objectively and correctly again I stated that in a legal situation the fact my phone call and the information was not documented in my notes meant it did not happen. How many other clients were having this sort of treatment? She did not like my attitude. She then said my previous psychiatrist did not want to see me. I said sorry is that documented? Where did you get this information? She did not respond. I said he sent my GP a letter saying I no longer wanted to see him, and that was not correct, as could be seen as I had rung up (and fortunately that had been documented twice) to say I did want to see him.
If she had records saying he did not want to see me, than they should be sent to my GP, as the information she had was incorrect. As a mental health client that could go against me, if the Disability people thought I did not want to see the psychiatrist. I was so upset and my anger was rising. I just wanted to get an appointment with a psychiatrist, there are no psychiatrist available in the southern area of Tasmania that bulk bill. I can not afford to pay to see one at all. I was crying by this point and had to hang up.
She rang me back about 10mins later, saying she hoped I had calmed down…I really battled to not bite her head off.. I let her talk, she said she had tried to ring 2 psychiatrists but no one was answering. She had left messages. I said is that all? yes I hung up. I was drained exhausted frustrated and just shattered.
The next morning I rang and lodged a complaint about information not being documented in my records and asking for a copy of the information that says the psychiatrist I had been seeing no longer wanted to see me. Not that I did not want to see him. I wanted my GPs records to be amended. I had to do that on the computer which at least was not a huge form.
I just can not cope. I do but it takes so much out of me. I get fixated and then begin to think if I am struggling and I am sort of better than I was, in some ways, how would anyone who was more unwell deal with any of this, and like with my Centrelink ban, I think many people would just give up and try and struggle on.
The concept of these Skype meetings is full of good intentions. But having people who have no idea and seem to not want to know anything about you but just give you drugs, (and Yes the meds I’m on are helping my brain but other areas are blah..like constantly weary. I sleep 12+hours with some weird really weird dreams, for a week or more and then I have a few nights were I am up all night, It is part of the have a brain that is functioning, or not symptoms.
Yet when I create a post such as this I see my mind is a bit all over the place, and I really struggle with paperwork. I am so fed up with what seems to me having to resolve things that I as the person with a mental illness should not have too. I am exhausted by the dealings of it all and my reaction is to begin to close myself off again. Not look at the phone, not communicate with other bloggers, not go and get the food I need. It was really only because my dogs needed their food for the fortnight that I ended up going out today. Then I am out for so long as I usually run into people who want to chat. Even today, I had rung and ordered my dogs meat, on Monday, and the person who took my order did not get it right. I had a few kilos in the freezer at home which would have got me over the long weekend(which I was oblivious too). So I was able to manage the situation in a no major issue kind of way, which was positive.
I keep reminding myself to be aware and to breathe, to acknowledge the feeling but not let it rule me. I also am getting better at saying to my little me that I the adult person am in charge and will deal with it.
I am really happy to be finding so many amazing bloggers out there I especially love wordpress.com/read/feeds/36149739/posts/2580354980, Charlies writing and his artwork make me smile and light a spark inside me wanting to be creative again. Yet for the moment I have to put that on hold for a few days.
I am really thankful that as a hoarder, (I have not shared that here before) I actually am really conscientious about what I am bringing in to my home. For quite a while I was gathering boxes, so many boxes cardboard and today the dog meat came in two cardboard boxes, and I know that they will go out in my car port(now devoid of cardboard boxes) but I will use them and put them on the grass in my veggie area that I am trying to get rid of. I threw a fair few of the other ones away as it was very big problem into recycling. I was somewhere else today and I was offered a box to carry some things (breakables) but I said thank You but I won’t and explained that I hoarded them! Wow was I so happy that not only I said no, but I reiterated out loud the reason why I did not want a box. I knew I had two already. If I had a third that I could do without, and I said NO huge step forward.
As a hoarder I also have to look at anything I am bringing home in any multiples. For example I got several large bowls at the tip shop(which is where I was offered the box) and a few pie dishes all glass or pottery. Plus I needed to replace my microwave glass plate that spins having broken my 18 months ago. I was tempted by so much stuff, and the constant thing in my head was you do not need that you are trying to de clutter, and not hoard, you are hear for large bowels for bird baths and drinking bowls for wild life. (some of my old plastic ones are deteriorating and need to be replaced). So I came home with four bowels, on microwave plate and this was a near miss in the hoarder scenario, as I there were five different sizes and not being sure of the size I almost bought the five. Self talk and I looked at them all and from somewhere inside my brain, take this one and if it is not right I am sure they would let you do a simple swap next timer! YES wonderful. I got the one I chose home and it fitted. Yippee.
So along with the part of my brain that is not functioning well and the constant tiredness, some aspects are going well.
The other thing is I am doing OK. I do think some of my reactions in dealing with the psych 2 U people were anxiety driven, I am no closer to having my assessment for DSP than I was nearly 8 months ago which is frustrating. I was about to write that I was also worrying about the new person changing medications, and I could feel myself reacting, and my auto anxiety responses physical sensations begin, and into my head came…not much point worrying about that now, you have five weeks before your appointment.
I am thankful I have an appointment, I am thankful that I am on meds that have some positives that out weigh the negatives, I am thankful for the wonderful bloggers who I enjoy reading, seeing their creativity and learning and sharing experiences with each other.