Psychiatrist, the good …sure beat the not good. (might trigger)

One of the hardest things for me is to leave my dogs at home when I have to go somewhere. It happens rarely if it is going to be a hot day and it is not safe to leave them in the car, it is raining heavily and I can’t leave the windows down or it is stormy with wind. Today was going to be warm, humid, stormy and windy. All things that Busby would not deal with in the car. I made the choice to leave them at home.

I almost cance

I have been diagnosed with Complex Post Traumatic Stress Disorder (CPTSD). I have had anxiety since I was in my teens that I am aware of, it may have been earlier but I do not have any recollection. I developed depression in my early twenties. I first tried to kill myself when I was 22.

Most people will be aware of Post Traumatic Stress Disorder(PTSD) but many people will not have heard of CPTSD.

It differs from PTSD in that instead of one traumatic event that impacts a person. The person, with CPTSD has had this occur in early childhood, and had repeated and long term trauma/s.

I explain this because I have certainly found myself having to explain and justify, why I am not able to work, enough times to make me annoyed.

When I can go out and basically all I do manage these days is shopping, once a week usually, appointments and my dogs exercise. (not sounding so healthy that Tazzie).

I have insight and know I am perhaps borderline Agrophobic. Why am I writing about this today? Whilst I really enjoy being at home and I am content at home, I do have anxiety sometimes and panic attacks , not as bad as some people. Mine tend to have me itching, hot and sweating ,heart racing and red in the face and neck. Perhaps not what most people would see as a panic attack.

I went to see a new Psychiatrist today; as the one I was seeing decided he did not want to see me any longer. I do not think he liked some of my comments to him about his not hearing me, or understanding the reality of my rural life, and my concerns over going on Ritalin. Having been a nurse I always check out any Doctor (no not just google but on reserch and journal articles, if they are affiliated with a university what the professional descriptions states.
I am not intimidated by any Doctor. I was a Registered Nurse and Had specialist Post Grad degree in Mental Health Nursing so will speak my mind. A doctor who hears ME and sees ME as an individual rather than seeming to have his or her own agenda, is upfront direct and honest. I will respect him or her.

I needed to see a psychiatrist as my Psychologist (who is not a Clinical Psychologist) and my GP both feel that the chances of me working or volunteering (which I have attempted unsecessfuly ) successfully in the foreseeable future is Nil. They agree I need to be applying for the Disability Pension.

For that I need to have an assessment and a letter from Clinical Psychologist or a Psychiatrist. Which is why I have been and am seeing a Psychiatrist.

So I saw the previous mentioned psychiatrist for 5 months the medication (other than the Ritalin) he prescribed me has helped my cognitive function so much that I almost feel my brain is back. The side effects are not wonderful sleeping to much for periods and than not enough, weird bizarre dreams so real that I wake up and have to remember it was a dream. These I am prepared to live with.

I was so anxious this morning as I was due to see the new psychiatrist. I was not going to allow him to change my medication as I feel the best I have apart from the a fore mentioned things. I nearly canceled, because I was going alone and I was running a few minutes late on the hour drive, which was good as it did take my mind of everything except paying attention to the road and not speeding or driving stupidly. I got there. I did not have time to think about my dogs for the next hour .

He was brilliant. He really listened to me, (even though the connection was breaking up at times). It is done by Skype in my GPs office. I have to see her afterward otherwise I could have my appointment at home. This psychiatrist suggested Melatonin for helping me to sleep. It will depend how much this costs as it is not on the Pharmaceutical Benefit Scheme. PBS (government subsidy for low income earners, people with disabilities, chronic illness, pensioners pay $6.60Aus for any script on the list).

He was also supportive of my application for the Disability Pension Scheme which means that when I receive his letter I will finally be able to apply for this. If I am successful it will mean I no longer have to deal with Centrelink and Newstart! I will not have to go to the Job Provider Network for a review, and potentially be made to again do volunteering. Or look for work. That will be a relief . It would also mean a big increase in my fortnightly payment.

We chatted about quite a bit in this hour, and he was concerned about my not leaving my home and whilst he said because I was doing a positive thing in making myself go shopping and have coffee and talking to people. I was possibly borderline for Agrophobia. I have thought about that since arriving home and he is onto something. I need to be really aware of this. I need to keep doing what I am and also consider adding another small thing. To keep me from closing off totally.

Sometimes it takes other eyes to see something that you have been aware of but to actually voice it back to you as potentially detrimental.

The problem now lies in dealing with the process of applying and ticking all the boxes crossing every t and dotting every i and hoping sincerely hoping that I will be accepted. There are so many horror stories out there about people who have severe physical illnesses and combination of both physical and mental illness that break my heart when I read them and wonder how these people can be knocked back. I do have the help of a Community Health Social Worker who has been helping me with all my paperwork that I find too confusing. (I know I said I had my brain back lol nothing to do with paperwork).

So even though I am happy that this is a forward movement I understand and realise it is not a sure bet. So many people are knocked back. All I can do is follow the directions, have all the letters from Psychiatrist, Psychologist, and GP together with it and submit it all together and hope.

So I am thankful today that I went to my appointment, I met a good Psychiatrist, which made me feel a lot better. I am thankful that this Psychiatrist actually said I needed to be on the DSP. which made me feel less like a con which I have been as I seem so ‘normal’ when I am talking one on one or small groups over a coffee or just running into people. I am thankful that I have asked for help and that I am accepting it. I am thankful that I continue to move forward. I am thankful for the incredible welcome I got on my return home.

Blessings to You all Tazzie.

Musings from down under down under

It is really interesting, I kind of thought with my budget being so tight and me being more content at home not finding it easy to be around people even to just pop in on people who tell me too.
I have not been anywhere out of my home area, well the dogs walks and I have chatted briefly with neighbours, for a week. I imagine to many this must be such a strange thing and way to live. I do not believe I am depressed, as I am achieving some small things inside my home. On top of having been getting my veggie garden up and functional again this summer. My dogs make me laugh and I laugh at things I watch appropriately

I have achieved finding a new psychiatrist, but I had to do all the work and that really annoyed me and exhausted me. We have a company/organisation called Phscy 2 U. Which is supposed to provide people who live in rural and isolated areas the access to psychologists and psychiatrists. I have been seeing a psychiatrist for 7 months (need to have an assessment conducted to get a letter from he/she to apply for disability pension). I use the term 7months very loosely here. I saw this particular psychiatrist for five months and then I have been trying to find out why he told my GP I no longer wished to see him. (I never said that). So to catch to the chase. I had rung the organisation to find out what was going on and if he would see me but I needed a new referral from my GP which was sent on the 12 December 2019. They never got back to me. I rang again, to be told that they would look for another psychiatrist.
Never heard anything, and as it was Christmas time now there was no point trying again until the new year. So ring again I did. No he was not seeing me anymore, no reason. They would look for a new psychiatrist.

One week later I ring again having heard nothing, oh the Psychiatrist had been away on leave and they would imagine I would hear from him soon. Another week passes, I hear nothing.

I ring again to be told I have to wait for this person to contact me as I am on ADHD medication and he is the only psychiatrist who can prescribe in Tasmania. I say I am not on ADHD medication where did you get that information from it is incorrect. Oh. I say since I am not on that medication you could find me a psychiatrist who could see me. She says she will send some emails.

I ring back again 10 days later. No record of me not being on ADHD medication no record of the conversation I had 10 days ago and no emails sent to any other Psychiatrists. Me not so happy. Person I spoke to lovely and says she will send something of right now. Me great I have been waiting since the 12th December it is now 26 January, and I have rung several times to follow up and no one has ever contacted me. This is making me unwell having to chase all this up my anxiety CPTSD is not great.

I ask if I can speak to a supervisor, she says no one is available at the moment but someone will ring back. I ask today? Yes today. OK

I wait and wait, the office closes at 4pm I have heard nothing and it is 3.30pm so I ring. The woman I spoke with was no help I said I had been waiting for a call from the supervisor, she says did you want the office manager or the Head person, me I just want someone who can help resolve this. She then went on to tell me emails had been sent before, I said are you meaning the emails that were sent this morning? No before that. Really how come you are the first person to tell me this, as the woman I spoke to this morning said nothing had been sent and she would email them. So would you give me the dates these emails were sent please. She was reluctant to do this. I again asked for the dates, and said to her I felt that I was getting a bumsteer from this company.

I also found out that the actual second referral from my GP which was faxed on the 12.12.19 (I rang my GP to confirm) was not put into this companies system until the 06/01/2020. No explanation available as they did not close the office until 24/12/19

In the course of this conversation I discovered there was no record of one of my phone calls and the conversation from that date. I as an RN/RPN (no longer working) stated that legally that was a huge error. I had called and there was no record of it! I said in a legal situation the courts would say if its not documented it did not happen, and that is wrong in so many ways in a medical setting to not have a record of a clients call documented. I said I would be contacting the Ombudsman in regard to that. I also said I had a right to know when the emails were sent I did not want to know who too. Just the date they were sent. She then admitted they were sent that morning! UGGh! I was feeling so angry.

I was so fed up and I could feel I was being triggered and my anger was beginning. I hung up not expecting to hear from anyone today.

A few minutes later I got a call from the person in charge. I had managed to calm myself a bit in the interim time, but I just waited for her to begin the conversation as she had rung me. She begins with there is no issue about the phone call not being recorded. I disputed this. I also requested that I wished to make a formal complaint about the process and what had occurred with the documentation she refused saying that me speaking to her was dealing with it. I said NO I wanted it to be documented as a formal complaint so it would go to the governing body. or whomever. As medical notes had to be kept objectively and correctly again I stated that in a legal situation the fact my phone call and the information was not documented in my notes meant it did not happen. How many other clients were having this sort of treatment? She did not like my attitude. She then said my previous psychiatrist did not want to see me. I said sorry is that documented? Where did you get this information? She did not respond. I said he sent my GP a letter saying I no longer wanted to see him, and that was not correct, as could be seen as I had rung up (and fortunately that had been documented twice) to say I did want to see him.
If she had records saying he did not want to see me, than they should be sent to my GP, as the information she had was incorrect. As a mental health client that could go against me, if the Disability people thought I did not want to see the psychiatrist. I was so upset and my anger was rising. I just wanted to get an appointment with a psychiatrist, there are no psychiatrist available in the southern area of Tasmania that bulk bill. I can not afford to pay to see one at all. I was crying by this point and had to hang up.
She rang me back about 10mins later, saying she hoped I had calmed down…I really battled to not bite her head off.. I let her talk, she said she had tried to ring 2 psychiatrists but no one was answering. She had left messages. I said is that all? yes I hung up. I was drained exhausted frustrated and just shattered.

The next morning I rang and lodged a complaint about information not being documented in my records and asking for a copy of the information that says the psychiatrist I had been seeing no longer wanted to see me. Not that I did not want to see him. I wanted my GPs records to be amended. I had to do that on the computer which at least was not a huge form.

I just can not cope. I do but it takes so much out of me. I get fixated and then begin to think if I am struggling and I am sort of better than I was, in some ways, how would anyone who was more unwell deal with any of this, and like with my Centrelink ban, I think many people would just give up and try and struggle on.

The concept of these Skype meetings is full of good intentions. But having people who have no idea and seem to not want to know anything about you but just give you drugs, (and Yes the meds I’m on are helping my brain but other areas are blah..like constantly weary. I sleep 12+hours with some weird really weird dreams, for a week or more and then I have a few nights were I am up all night, It is part of the have a brain that is functioning, or not symptoms.

Yet when I create a post such as this I see my mind is a bit all over the place, and I really struggle with paperwork. I am so fed up with what seems to me having to resolve things that I as the person with a mental illness should not have too. I am exhausted by the dealings of it all and my reaction is to begin to close myself off again. Not look at the phone, not communicate with other bloggers, not go and get the food I need. It was really only because my dogs needed their food for the fortnight that I ended up going out today. Then I am out for so long as I usually run into people who want to chat. Even today, I had rung and ordered my dogs meat, on Monday, and the person who took my order did not get it right. I had a few kilos in the freezer at home which would have got me over the long weekend(which I was oblivious too). So I was able to manage the situation in a no major issue kind of way, which was positive.

I keep reminding myself to be aware and to breathe, to acknowledge the feeling but not let it rule me. I also am getting better at saying to my little me that I the adult person am in charge and will deal with it.
I am really happy to be finding so many amazing bloggers out there I especially love wordpress.com/read/feeds/36149739/posts/2580354980, Charlies writing and his artwork make me smile and light a spark inside me wanting to be creative again. Yet for the moment I have to put that on hold for a few days.

I am really thankful that as a hoarder, (I have not shared that here before) I actually am really conscientious about what I am bringing in to my home. For quite a while I was gathering boxes, so many boxes cardboard and today the dog meat came in two cardboard boxes, and I know that they will go out in my car port(now devoid of cardboard boxes) but I will use them and put them on the grass in my veggie area that I am trying to get rid of. I threw a fair few of the other ones away as it was very big problem into recycling. I was somewhere else today and I was offered a box to carry some things (breakables) but I said thank You but I won’t and explained that I hoarded them! Wow was I so happy that not only I said no, but I reiterated out loud the reason why I did not want a box. I knew I had two already. If I had a third that I could do without, and I said NO huge step forward.

As a hoarder I also have to look at anything I am bringing home in any multiples. For example I got several large bowls at the tip shop(which is where I was offered the box) and a few pie dishes all glass or pottery. Plus I needed to replace my microwave glass plate that spins having broken my 18 months ago. I was tempted by so much stuff, and the constant thing in my head was you do not need that you are trying to de clutter, and not hoard, you are hear for large bowels for bird baths and drinking bowls for wild life. (some of my old plastic ones are deteriorating and need to be replaced). So I came home with four bowels, on microwave plate and this was a near miss in the hoarder scenario, as I there were five different sizes and not being sure of the size I almost bought the five. Self talk and I looked at them all and from somewhere inside my brain, take this one and if it is not right I am sure they would let you do a simple swap next timer! YES wonderful. I got the one I chose home and it fitted. Yippee.

So along with the part of my brain that is not functioning well and the constant tiredness, some aspects are going well.

The other thing is I am doing OK. I do think some of my reactions in dealing with the psych 2 U people were anxiety driven, I am no closer to having my assessment for DSP than I was nearly 8 months ago which is frustrating. I was about to write that I was also worrying about the new person changing medications, and I could feel myself reacting, and my auto anxiety responses physical sensations begin, and into my head came…not much point worrying about that now, you have five weeks before your appointment.

I am thankful I have an appointment, I am thankful that I am on meds that have some positives that out weigh the negatives, I am thankful for the wonderful bloggers who I enjoy reading, seeing their creativity and learning and sharing experiences with each other.

blessings Tazzie

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